Clinical Practice Committee

Suggested Reading List

December 2007

The Clinical Practice Committee (CPC) of the American Association of Spinal Cord Injury Psychologists and Social Workers (AASCIPSW) develops an updated list of readings twice a year.  The purpose of this reading list is to provide persons working in the area of spinal cord injury with a list of classic, important, or otherwise useful references that cover the main areas related to the psychosocial aspects of rehabilitation. 

The reading list is generated in the following manner: 1) the committee brainstorms and reviews previous reading lists in order to generate the topic areas; 2) committee members suggest readings in each topic area; 3) recognized experts in selected areas are contacted to provide suggested readings; 4) AASCIPSW members are encouraged to make suggestions for new readings, and 5) committee members review and edit the final list.  Readings marked with an asterisk are considered to be the most important readings by committee members or topic experts.

The Clinical Practice Committee is recognized for their dedicated revision work on this project: Heather F. Russell, Ph.D., ABPP, Chair; Sara J. Klaas, MSW, LSW, Board Liaison; Sigmund Hough, Ph.D., ABPP; Chuck Bombardier, Ph.D.; Ellen M. Cloyed, MSW, ACSW, LISW; Shirley Jackson, LICSW; Bernie Quell, LPC; and Chuck Bombardier, Ph.D., Consortium Liaison.

TOPIC INDEX

Adjustment

Aging

Assistive Technology

Bioethics

Caregivers

Community Integration, Recreation/Leisure

Culture and Diversity

End of Life

Health Behaviors and Prevention

Interdisciplinary Team Functioning

Marriage and Family Issues

Mental Health Disorders

Neuropsychology and Traumatic Brain Injury

Pain

Parenting with a Disability

Pediatrics

Personal Assistance Services

Quality of Life

Sexuality

Sexuality Videos

Social Support: Peer/Community

Substance Abuse

Textbooks: General/Comprehensive

Treatment Adherence

Vocation

Women

TOPIC AREAS

Adjustment (Back to the Top)

Anderson, C.J., Vogel, L.C., Chlan, K.M., Betz, R.R., & McDonald C.M. (2007). Depression in adults who sustained spinal cord injuries as children or adolescents. Journal of Spinal Cord Medicine, 30(1), S76-S82.

Blotzer, M. A., & Ruther, R. (1995). Sometimes you just want to feel like a human being:

Case studies of empowering psychotherapy with people with disabilities. Baltimore:

Paul H. Brookes Publishing Co.

* Crewe, N., & Krause, J. (1987). Spinal Cord Injury: Psychological Aspects. In B.

Caplan (Ed.), Rehabilitation Psychology Desk Reference. Gaithersburg, MD: Aspen

Publishers.

Elliott, T. (1999). Social problem solving abilities and adjustment to recent-onset

physical disability. Rehabilitation Psychology, 44, 315-332.

Elliott, T., Uswatte, G., Lewis, L., & Palmatier, A. (2000). Goal instability and

adjustment to physical disability. Journal of Counseling Psychology, 47, 251-265.

* Elliott, T., & Richards, J. S. (1999). Living with the facts, negotiating the terms:

unrealistic beliefs, denial and adjustment in the first year of acquired disability.

Journal of Personal and Interpersonal Loss, 4, 361-381.

* Hall, K. M., Knudsen, S. T., Wright, J., Charlifue, S. W., Graves, D. E., & Werner, P.

(1999). Follow-up study of individuals with high tetraplegia (C1-C4) 14 to 24 years

postinjury. Archives of Physical Rehabilitation Medicine, 80 (11), 1507-13.

Hammell, K.W. (2007). Experience of rehabilitation following spinal cord injury: a meta synthesis of qualitative findings. Spinal Cord, 45(4), 260-274.

Hayes, R. (1995). Counseling the client on wheels: a primer for mental health

counselors new to spinal cord injury. Journal of Mental Health Counseling, 17 (1),

18-30.

Hui, S. A., Eliott, T., Shewchuk, R., & Rivera, P. (2007). Communal Behaviors and

Psychological Adjustment of Family Caregivers and Persons with Spinal Cord Injury.

Rehabilitation Psychology, 52(1), 113-119.

Jackson, S. A., & Hough, S. (2004). Adjustment to the process of grief following a spinal

cord injury/dysfunction. SCI Psychosocial Process, 17(3), 145-155. SCI Nursing

(2005), 22 (1), 15-9.

Lammertse, D. P., Jackson, A. B., & Sipski, M. L. (2004). Research from the model

spinal cord injury systems: Findings from the current 5-year grant cycle. Archives of

Physical Medicine and Rehabilitation, 85(11), 1737-1739.

* Lawson, N. C. (1978). Significant events in the rehabilitation process: the spinal cord

patient's point of view. Archives of Physical Rehabilitation Medicine, 59(12), 573-9.

Livneh, H., Martz, E., Bodner, T. (2006). Psychosocial Adaptation to Chronic Illness and

Disability: A Preliminary Study of its Factorial Structure. Journal of Clinical

Psychology in Medical Settings. 13(3), 251-261.

Lustig, D. C. (2005). The Adjustment Process for Individuals with Spinal Cord Injury:

The Effect of Perceived Premorbid Sense of Coherence. Rehabilitation Counseling

Bulletin. 48(3), 146-156.  

Marini, I. D. (2005). Issues of Males with Physical Disabilities in Rehabilitation Settings.

In G. E. Good & G. R. Brooks (Eds.). The new handbook of psychotherapy and

counseling with men: A comprehensive guide to settings, problems, and treatment

approaches (pp. 88-103). San Francisco, CA, US: Jossey-Bass.

Murray, R.F., Asghari, A., Egorov, D.D., et al. (2007). Impact of spinal cord injury on self-perceived pre- and postmorbid cognitive , emotional, and physical functioning. Spinal Cord, 45(6), 429-436.

* Parrott, R., Stuart, T., & Cairns, A. D. (2000). Reducing uncertainty through

communication during adjustment to disability: living with spinal cord injury. In

D. O. Braithwaite & T. L. Thompson (Eds.), Handbook of Communication and

People with Disabilities (pp. 339-352). Mahwah, NJ: Lawrence Erlbaum Associates,

Inc.

Pollard, C. & Kennedy, P. (2007). A longitudinal analysis of emotional impact, coping strategies and post-traumatic psychological growth following spinal cord injury: A 10 year review. British Journal of Health Psychology, 12(3), 347-362.

Richards, J. S., Elliott, T., Shewchuk, R., & Fine, P. R. (1997). Attribution of

responsibility for onset of spinal cord injury and psychosocial outcomes in the first

year post-injury. Rehabilitation Psychology, 42, 115-124.

* Richards, J. S. (1986). Psychologic adjustment to spinal cord injury during first post-

discharge year. Archives of Physical Medicine and Rehabilitation, 67(6), 362-5.

Rohe, D. E. (1998). Psychological aspects of rehabilitation. In J. A. DeLisa & B. Gans

(Eds.), Rehabilitation Medicine: Principles and Practice (3rd ed., pp. 189-212).

Philadelphia: Lippencott-Raven.

Schoop, L.H., Good, G.E., Mazurek, M.O., et al. (2007). Masculine role variables and outcomes among men with spinal cord injury. Disability and Rehabilitation, 29(8), 625-633.

Temple, R., & Elliott, T. (2000). Personality disorder characteristics and adjustment

following spinal cord injury. Topics in Spinal Cord Injury Rehabilitation, 6(1), 54-65.

* Trieschmann, R. B. (1988). Spinal Cord Injuries: Psychological, Social and Vocational

Rehabilitation. (2nd Ed.). New York: Demos Publication.

* Warschausky, S., Majchrzak, N. E., Lifford, M., Dixon, P., & Tate, D. (2004).

Associations between family and child adjustment following traumatic injury of

brain versus spine. SCI Psychosocial Process, 17, 97-105.

Yetzer, E., Schandler S., Root, T., & Turnbaugh K. (2003). Self-concept and body

image in persons who are spinal cord injured with and without lower limb amputation.

SCI Nursing, 20(1), 18-23.

Aging (Back to the Top)

* Charlifue, S. W., & Lammertse, D. P. (2001). Aging in SCI. In S. Kirshblum, D.

Campagnolo, & J. DeLisa (Eds.), Spinal Cord Injury Medicine. Philadelphia:

Lippincott, Williams, & Wilkins.

* Charlifue, S., Lammertse, D.P., & Adkins, R.H. (2004). Aging with spinal cord injury:

Changes in selected health indices and life satisfaction. Archives of Physical

Medicine and Rehabilitation, 85, 1848-53.

Chung, M. C., Preveza, E., Papandreou, K., & Prevezas, N. (2006). Spinal cord injury,

Post-traumatic stress, and locus of control among the elderly: A comparison with

young and middle-aged patients. Psychiatry: Interpersonal and Biological Processes,

69(1), 69-80.

* Gerhart, K., Charlifue, S., Menter, R., Weitzenkamp, D. A., & Whiteneck, G. (1997).

Aging with Spinal Cord Injury. American Rehabilitation, 23 (1).

Gerhart, K., Chase, T. M., & Weitzenkamp, D. (1998). Aging & SCI: Stressed Out?

Paraplegia News, August.

* Holicky, R., & Charlifue, S. (1999). Aging with spinal cord injury: the impact of

spousal support. Disability and Rehabilitation, 21(5-6), 250-257.

Kemp, B. J. (1999). Quality of life while aging with a disability. Assistive Technology,

11(2), 158-63.

Kemp, B. J., & Krause, J. S. (1999). Depression and life satisfaction among people aging

with post-polio and spinal cord injury. Disability Rehabilitation, 21(5-6), 241-9.

Kewman, D. G., & Tate, D. G. (1998). Suicide in SCI: A psychological autopsy.

Rehabilitation Psychology, 43(2), 143-151.

* Krause, J. S., Kemp, B., & Coker, J. (2000). Depression after spinal cord injury:

relation to gender, ethnicity, aging, and socioeconomic indicators. Archives of

Physical Medicine and Rehabilitation, 81(8), 1099-109.

* Krause,J.S., Broderck, L.(2005). A 25-Year longitudinal study of the natural course of

aging after spinal cord injury. Spinal Coordination, Feb 15.

* Lammertse, D. P., & Yarkony, G. M. (1991). Rehabilitation in spinal cord disorders. 4.

Outcomes and issues of aging after spinal cord injury. Archives of Physical Medicine

and Rehabilitation, 72(4-S), S309-11.

* McColl, M. A., Stirling, P., Walker, J., Corey, P., & Wilkins, R. (1999). Expectations

of independence and life satisfaction among ageing spinal cord injured adults.

Disability Rehabilitation, 21(5-6), 231-40.

McColl, M. A., Arnold, R., Charlifue, S., & Gerhart, K. (2001). Social support and aging

with a spinal cord injury: Canadian and British experiences. Topics in Spinal Cord

Injury Rehabilitation, 6 (3).

Pentland, W., Walker, J., Minnes P, Tremblay, M., Brouser B, Gould, M. (2002) Women

with spinal cord injury and the impact on aging. Spinal Coordination, 40(8): 374-

87.

 * Trieschmann, R. B. (1987). Aging with a Disability. New York: Demos Publication.

* Whiteneck, G. (1992). Aging with Spinal Cord Injury. New York: Demos Publication.

Assistive Technology (Back to the Top)

* Brooks, N. A. (1991). Users' responses to assistive devices for physical disability.

Social Sciences & Medicine, 32(12), 1417-24.

* Chaves, E. S., Boninger, M. L., Cooper, R., Fitzgerald, S.G., Gray, D. B., & Cooper, R.

A. (2004). Assessing the influence of wheelchair technology on perception of

participation in spinal cord injury. Archives of Physical Rehabilitation and

Medicine,85, 1854-8.

* Cohen, E., Tate, D., & Forchheimer, M. (1994). SCI resources and outcomes:

Perceptions of resources needed and received following SCI and long term

psychological and functional outcomes: A pilot study. SCI Psychosocial Process,

7(2), 47-54.

* Cooper, R. A., Boninger, M. L., Cooper, R, Fitzgerald, S. G., & Kellerher A. (2004). 

  Preliminary assessment of a prototype advanced mobility device in the work

environment of veterans with spinal cord injury. Neurorehabilitation. 19(2),

161-70.

* Galvin, J. C., & Scherer, M. J. (1996). Evaluating, Selecting and Using Appropriate

Assistive Technology. Gaithersburg, MD: Aspen Publishers.

Merbitz, C., Merbitz, N. H. & Scherer, M. J.  (2005). Assistive technology for case

managers.  In F. Chan, M. J. Leahy & J. L. Saunders (Eds). Case Management for

Rehabilitation Health Professionals Volume I (pp. 197-227).  Osage Beach, MO:

  Aspen Professional Services.

* Rieger, J. M. (2003).  The effect of automatic speech recognition systems on speaking

workload and task efficiency.  Disability & Rehabilitation.  25(4-5), 224-35.

Scherer, M. J. (2005).  Connecting to Learn:  Educational and Assistive Technology for

People with Disabilities.  Washington, DC:  American Psychological Association

(APA) Books.

* Scherer, M. J. (2005). Living in the State of Stuck: How Technology Impacts the Lives

of People with Disabilities. (4th Ed.). Cambridge, MA: Brookline Books.

Scherer, M. J. (2005). Assessing the benefits of using assistive technologies and other

supports for thinking, remembering and learning. Disability and Rehabilitation, 27

(13): 731-739.

Scherer, M. J. & Glueckauf, R.  (2005). Assessing the benefits of assistive technologies

for activities and participation. Rehabilitation Psychology, 50(2).

Scherer, M. J., Hart, T., Kirsch, N., & Schulthesis, M. (2005). Assistive technologies for

cognitive disabilities. Critical Reviews in Physical and Rehabilitation Medicine, 17

(3), 195-215.

Scherer, M. J., Sax, C., Vanbeirvliet, A., Cushman, L. A., & Scherer, J. V.

  (2005). Predictors of assistive technology use:  The importance of personal and

psychosocial factors. Disability & Rehabilitation, 27(21), 1321-1331.

* Scherer, M. J. (Ed.). (2002). Assistive Technology: Matching Device and Consumer for

Successful Rehabilitation. Washington, DC: American Psychological Association.

* Scherer, M. J. & Cushman, L. A. (2000). Predicting satisfaction with assistive

technology for a sample of adults with new spinal cord injuries. Psychological

Reports, 87, 981-987.

* Scherer, M. J. (1996). Outcomes of assistive technology use on quality of life.

Disability and Rehabilitation, 18(9), 439-48.

Spinal Network. (1998) The Total Wheelchair Resource Book, New Mobility

Magazine. No Limits Communication, Inc. Horsham, PA 19044.

Bioethics (Back to the Top)

* Appelbaum, P. S., & Grisso, T. (1988). Assessing patients' capacities to consent to

treatment. New England Journal of Medicine, 319(25), 1635-8.

Banja, J. D. (1996). Ethics, values, and world culture: the impact on rehabilitation.

Disability Rehabilitation, 18(6), 279-84.

* Banja, J. D., & Rosenthal, M. E. (1996). Special Issue: Ethics. NeuroRehabilitation:

An Interdisciplinary Journal, 6(2).

* Caplan, A. L. (1988). Informed consent and provider-patient relationships in

rehabilitation medicine. Archives of Physical Medicine Rehabilitation, 69(5),

312-7.

* Caplan, A. L., Callahan, D., & Haas, J. (1987). Ethical & policy issues in rehabilitation

medicine. Hastings Cent Rep, 17 (4), 1-20.

* Callahan, D. (1988). Families as caregivers: the limits of morality. Archives of Physica

l Rehabilitation Medicine, 69(5), 323-8.

Deaton, A. (1996). Ethical issues in pediatric rehabilitation. Rehabilitation Psychology,

41, 53-72.

* Deaton, A. V., & Hanson, S. E. (1996). Special Issue on Ethics and Rehabilitation

Psychology. Rehabilitation Psychology, 41(1).

* Grisso, T. (1988). Evaluating Competencies: Forensic Assessments and Instruments.

New York: Plenum Press.

* Hanson, S., Guenther, R., Kerkhoff, T., & Liss, M. (2000). Ethics: Historical

foundations, basic principles and contemporary issues. In Frank & Elliott (Eds.),

Handbook of Rehabilitation Psychology. Washington, DC: American Psychological

Association.

* Jennings, B., Callahan, D., & Caplan, A. L. (1988). Ethical challenges of chronic

illness. Hastings Cent Rep, 18(1), 1-16.

Miller, S. S., & Marin, D. B. (2000). Assessing capacity. Emergency Medical Clinics of

North America, 18(2), 233-42.

* Purtilo, R. B. (1986). Ethical issues in the treatment of chronic ventilator-dependent

patients. Archives of Physical Rehabilitation Medicine, 67(10), 718-21.

* Purtilo, R. B. (1988). Ethical issues in teamwork: the context of rehabilitation. Archives

of Physical Rehabilitation Medicine, 69(5), 318-22.

Tuszynski, M.H., Steeves, J.D, Fawcett, J.W., et al. (2007). Guidelines for the conduct of clinical trials for spinal cork injury as developed by the ICCP panel: clinical trail inclusion exclusion criteria and ethics. Spinal Cord, 45(3), 222-231.

Wegener, S. T. (1996). The rehabilitation ethic and ethics. Rehabilitation Psychology,

41, 5-17.

* The President's Commission for the Study of Ethical Problems in Medicine and

Biomedical and Behavioral Research, Making Health Care Decisions, (1982).

 Vol. 1. Washington, DC: U.S. Government Printing Office.

Caregivers (Back to the Top)

As the Years Go By: Accepting New Help, Caregiving, and Long-term Caregivers:

RRTC on Aging With Spinal Cord Injury. Craig Hospital, Englewood, CO 80110.

Blanes, L., Carmangnani, M.I.S., & Ferreira, L.M. (2007). Health related quality of life of primary caregivers of persons with paraplegia. Spinal Cord, 45(6), 399-403.

Boschen, K. (2005). The impact of being a support provider to a person living in the

community with a spinal cord injury. Rehabilitation Psychology, 50(4), 397-407.

Cloyed, E. & Healy, D. (2004). Caregiver's event: the process of developing a wellness

day for caregivers. SCI Psychosocial Process.

Dreer, L.E., Elliott, T.R., & Shewchuk, R. (2007). Family caregivers of persons with spinal cord injury: Predicting caregivers at risk for probable depression. Rehabilitation Psychology, 52(3), 351-357.

* Elliott, T. R., Shewchuk, R. M., & Richards, J. S. (2001). Family caregiver social

problem-solving abilities and adjustment during the initial year of the Caregiving

role. Journal of Counseling Psychology, Special Issue, 48(2), 223-232.

Elliot, T., Shewchuk, R., Richards, J. (1999). Caregiver social problem-solving abilities

and family member adjustment to recent onset physical disability. Rehabilitation

Psychology, 44, 104-123.

* Elliott, T. R., & Shewchuk, R. M. (1998). Recognizing the family caregiver: Integral

and formal members of the rehabilitation process. Journal of Vocational

Rehabilitation Special Issue: Spinal Cord Injury, 10(2), 123-132.

Fisher, L. (2006). Research on the family and chronic disease among adults: Major

trends and directions. Families, Systems, & Health, 24 (4), 373-380.

Harvard Health Publications. Caregiver's Handbook: A guide to caring for the ill,

elderly, or disabled…and yourself.

Ilardo, J. & Rothman, C. (1999). I'll Take Care of You: A Practical Guide for Family

Caregivers. Oakland, CA: New Harbinger Publications, Inc.

Mayer, T. (2004). Families: The ultimate caregivers? SCI Psychosocial Process, 17,

184-186.

Mintz, S. (2002). Love, Honor, and Value. Herndon, VA: Capital Books, Inc.

Pakenham, K., Bursnall, S. (2006). Relations between social support, appraisal and

coping and both positive and negative outcomes for children of a parent with multiple

sclerosis and comparisons with children of healthy parents. Clinical Rehabilitation 20,

709-723.

Rintala, D.H. (2004) Project FOCUS: Helping family caregivers solve problems. SCI

Psychosocial Process, 17, 120-122.

Russell, C., White, M., & White, C. (2006). Why me? Why now? Why multiple

sclerosis?: making meaning and perceived quality of life in a Midwestern sample of

patients with multiple sclerosis. Families, System, & Health, 24 (1), 65-81.

Saint-Charles (2004). Toward reconstructing the identity of primary caregivers for

people with disabilities. SCI Psychosocial Process, 17(2), 89-96.

Sherman, J. (1998). Coping With Caregiver Worries. Gilsum, NH: Pathway Books.

Strom, K. (2000). A Caregiver's Survival Guide: How to Stay Healthy When Your

Loved One is Sick. Downers Grove, IL: InterVarsity Press.

Su, D. (2002). The experiences and perceptions of older family caregivers of people

with spinal cord injury living in the community: service implications. SCI

Psychosocial Process, 15(3), 130-138.

Community Integration, Recreation/Leisure (Back to the Top)

* Armstrong, M., & Lauzen, S.  (1994). Community Integration Program. Idyll Arbor,

WA: Incorporated.

* BC Paraplegic Association. (2004). Coming Into Focus: People living with spinal cord

injury in BC. Vancouver, BC:

http://www.canparaplegic.org/pdf/bc/comingintofocus.pdf

* Boschen, K. A, Tonack, M,  & Gargaro, J. (2003) Long-term adjustment and

community reintegration following spinal cord injury. International Journal of

Rehabilitation, 3, 157-64.

Bryan, W. V. (1996). In Search of Freedom: How people with disabilities have been

disenfranchised from the mainstream of American society. Springfield, IL: Charles C.

Thomas.

* Charlifue, S, & Gerhart, K. (2004) Community Integration in spinal cord injury of long

duration. NeuroRehabilitation, 2, 91-101.

Condeluci, A. (1996). Interdependence: The route to community. (2nd Ed.). Winter Park,

FL: GR Press.

* Coyle, C., Kinney, W. B., Riley, B., & Shank, J. (1991). Benefits of Therapeutic

Recreation: A Consensus View. Idyll Arbor, WA: Incorporated.

* Crewe, N. M., & Zola, I. K. (Eds.). (1983). Independent living for physically disabled

people. San Francisco: Josey-Bass Publications.

Daniel, A. & Manigandan, C. (2005).  Efficacy of leisure intervention groups and their

impact on quality of life among people with spinal cord injury. Int J Rehab Res.,

28(1):43-45.

* Dattilo, J., Caldwell, L., Lee, V., & Kleiber, D. (1998). Returning to the community

with a spinal cord injury: Implications for therapeutic recreation specialists.

Therapeutic Recreation Journal (First Quarter).

Donnelly, C. & Eng, J. J. (2005).  Pain following spinal cord injury: the impact on

community reintegration. Spinal Cord, 43(5):278-282.

Johnson, K.A. & Klaas, S.J. (2007). The changing nature of play: Implications for pediatric spinal cord injury. Journal of Spinal Cord Medicine, 30(1), S721-S75.

Johnson, K. A. & Klaas, S. J. (2005).  Societal trends impacting children: recreation

implications for those with spinal cord injuries. SCI Nursing, 22(1)36-37.

Johnson, K. A., Klaas, S. J., et al (2004).  Leisure characteristics of the pediatric spinal

cord injury population.  J Spinal Cord Med. 27 (suppl.) 1:107-109.

Johnson, K. A. & Klaas, S. J. (2002).  Outdoor Recreation: Improving the Quality of Life

for the Pediatric Spinal Cord Injury Population.  SCI Psychosocial Process, 16(1),

13-15.

Johnson, K. A. & Klaas, S. J. (1999). Using a hospital based pediatric spinal cord injury

sports and conditioning camp to facilitate leisure education.  SCI Psychosocial

Process, 12(2), 54-56.

Johnson, K. A. & Klaas, S. J. (1999). Recreation Involvement and Play in Pediatric

Spinal Cord Injury.  Topics in Spinal Cord Injury Rehabilitation, 6 (suppl), 105-109.

Johnson, K. A. & Klaas, S. J. (1997). Recreation Issues and Trends in Pediatric Spinal

Cord Injury. Topics in Spinal Cord Injury Rehabilitation, 3(2), 79-84.

* Kleiber, D. (1999). Leisure Experience and Human Development. New York: Basic

Books.

Latimer, A., Ginis, K., & Arbour, K.  (2006). The efficacy of an implementation intention

intervention for promoting physical activity among individuals with spinal cord

injury: A randomized controlled trial. Rehabilitation Psychology, 51(4), 273-280.

* Latimer, A.E., & Martin Ginis, K.A. (2005). The theory of planned behavior in

prediction of leisure time physical activity among individuals with spinal cord

injury. Rehabilitation Psychology, 50, 389-396.

Lee, Y. & Mittelstaedt, R. (2004).  Impact of injury level and self-monitoring on free

time boredom of people with spinal cord injury.  Disability Rehabilitation. 7:26

(19), 1143-1149.

* Lee, Y., Mittelstaedt, R., & Askins, J. (1999). Predicting free time boredom of people

with spinal cord injury. Therapeutic Recreation Journal (Second Quarter).

Levins, S. M., Redenbach, D. M., & Dyck, I. (2004).  Individual and societal influences

on participation in physical activity following spinal cord injury: a qualitative study.

  Physical Therapy, 84(6), 496-509.

O’Neill, S. B. & Maguire, S. (2004).  Patient perception of the impact of sporting activity

on rehabilitation in a spinal cord injuries unit.  Spinal Cord. 42(11):627-630.

Scelza, W.M., Kirshblum, S.C., Wuermser, L., Ho, C.H., Priebe, M.M., & Chiodo, A.E. (2007). Spinal cord injury medicine: Community re-integration after SCI. Archives of Physical and Medical Rehabilitation, 88(3 supp 1): S71-75.

Schonherr, M. C., Groothoff, J. W., et al.  (2005). Participation and satisfaction after

spinal cord injury: results of a vocational and leisure outcome study. Spinal Cord,

43(4):241-248.

Schopp, L., Clark, M., Hagglund, K., Sherman, A., Stout, B., Gray, D., & Boninger, M. 

(2007). Life activities among individuals with spinal cord injury living in the

community: Perceived choice and perceived barriers. Rehabilitation Psychology,

52(1), 82-88.

Slater, D. & Meade, M. A. (2004).  Participation in recreation and sports for persons with

spinal cord injury: review and recommendations. NeuroRehabilitation, 19(2),

121-129.

Smith, B. & Sparks, A. C. (2005).  Men, sports, spinal cord injury, and narratives of

hope.  Soc SCI Med., 61(5), 1095-1105.

Song, HY. (2005). Modeling social reintegration in persons with spinal cord

injury. Disability Rehabilitation, 27(3), 131-141.

Tasiemski, T., Kennedy, P., Gardner, B. (2006). Examining the continuity of recreation

engagement in individuals with spinal cord injuries.  Therapeutic Recreation Journal,

40(2), 77-93.

* Tasiemski, T., Kennedy, P., Gardner, B. P., & Taylor, N. (2005). The association of

sports and physical recreation with life satisfaction in a community sample of people

with spinal cord injuries. NeuroRehabilitation, 20(4), 253-265.

Wahman, K., Biguet, G., & Levi, R. (2006). What promotes physical activity after spinal

cord injury?  An interview study from a patient perspective.  Disability and

Rehabilitation: An international multidisciplinary Journal, 28(8), 481-488.

Whiteneck, G., Meade, M. A., Dijkers, M., Tate, D. G., Bushnik, T., & Forchheimer, M.

B. (2004). Environmental factors and their role in participation and life satisfaction

after spinal cord injury. Archives of Physical Medicine and Rehabilitation, 85, 1793-

1803. 

Culture and Diversity (Back to the Top)

* Andrews, J. D. (1995). Cultural, Religious Ethnic reference manual for health care

providers. Winston Salem, NC: JAMARDA Resources.

* Callahan, J. (1989). Don't worry, he won't get far on foot: The autobiography of a

dangerous man. New York: William Morrow and Company, Inc.

DeJong, G. (1979). The movement for independent living: Origins, ideology and

implications for disability research. Michigan State University: University Center for

International Rehabilitation.

* Devlieger, P.J., Albrecht, G.L., & Hertz, m. (2007). The production of disability culture among young African-American men. Social Science & Medicine, 64, 1948-1959.

Fine, M., & Asch, A. (1988). Disability beyond stigma: Social interaction,

discrimination, and activism. Journal of Social Issues, 44(1), 3-21.

Gallaher, C. K., & Hough, S. (2001). Ethnicity and age issues: Attitudes affecting

rehabilitation of individuals with spinal cord injury. Rehabilitation Psychology,

Special Issue, 46(3), 312-321.

Gilson, S. F., & Depoy, E. (2000). Multiculturalism and disability: a critical perspective.

Disability and Society, 15(2), 207-218.

* Gilson, S. F., MacDuffie, H., & Myerson, K. (In press). Integrating Disability Content

in Social Work Education: A Curriculum Resource. Alexandria, VA: Council on

Social Work Education.

Gontkovsky, S.T., Russum, P., & Stokic, D.S. (2007). Perceived information needs of community-dwelling persons with chronic spinal cord injury: Findings of a survey and impact of race. Disability and Rehabilitation, 29(16), 1305-1312.

Hahn, H. (1988). The politics of physical differences: disability and discrimination.

Journal of Social Issues, 44(1), 39-47.

* Hales, G. (Ed.). (1996). Beyond disability: Towards and enabling society. London:

SAGE Publications.

Hallahan, D. P., & Kauffman, J. M. (1994). Toward a culture of disability in the

aftermath of Dino and Dunn. The Journal of Special Education, 27(4), 496-508.

Hanson, S.L. & Kerkhoff, T.R. (2007). Ethical decision making in rehabilitation: consideration of latino cultural factors. Rehabilitation Psychology, 52(4), 409-420.

* Hernandez, Brigida (2005). A voice in the chorus: Perspectives of young men of color

on their disabilities, identities, and peer-mentors. Disability & Society, 20(2), 117-

133.

Hirsch, K. (1995). Culture and disability: The role of oral history. Oral History Review,

22(1), 1-27.

Johnson, M. (Ed.). (1992). People with disabilities explain it all for you: Your guide to

the public accommodations requirements of the Americans with Disabilities Act.

Louisville, KY: The Advocate Press.

* Kemp, B., Krause, J. S., Adkins, R. (1999). Depression among African Americans, Latinos, and Caucasians with spinal cord injury: An exploratory study. Rehabilitation Psychology, 44(3), 235-247.

* Krause, J.S. (1998). Subjective well-being after spinal cord injury: relationship to

gender, race-ethnicity, and chronological age. Rehabilitation Psychology, 43(4),

292-296.

* Krefting, L. H., & Krefting, D. V. (1991). Cultural influences on performance. In C.

Christian & C. Baum (Eds.), Occupational Therapy: Overcoming Human

Performance Deficits (pp. 101-122). Thorofare, NJ: Slack.

Linton, S., Mello, S., & O'Neill, J. (1995). Disability studies: expanding the parameters

of diversity. Radical Teacher, 47, 4-10.

Livneh, H. (1980). Disability and monstrosity: further comments. Rehabilitation

Literature, 41(11-12), 280-3.

Livneh, H. (1982). On the origins of negative attitudes toward people with disabilities.

Rehabilitation Literature, 43(11-12), 338-47.

Longmore, P. K. (1987). Uncovering the hidden history of people with disabilities.

Review of American History, 15(3), 355-64.

* Mackelprang, R. W., & Salsgiver, R. O. (1999). Disability: A Diversity Model in

Human Service Practice: Brooks Cole.

Mackelprang, R. W., & Salsgiver, R. O. (1996). People with disabilities and social work:

historical and contemporary issues. Social Work, 41(1), 7-14.

* Marini, I. (2001). Cross cultural counseling issues of males who sustain a disability.

Journal of Applied Rehabilitation Counseling, 32(1), 36-44.

* Morris, J. (1991). Pride against prejudice: Transforming attitudes to disability.

Philadelphia: New Society Publishers.

Myer, L. H., Peck, C. A., & Brown, L. (Eds.). (1991). Critical issues in the lives of

people with severe disabilities. Baltimore: Paul H. Brookes Publishing Co.

Olkin, R. (2001). What psychotherapists should know about disability. New York:

Guilford Press.

Padela, A. I. (2007). Can you take care of my mother? Reflections on cultural competency and clinical accommodation. Society for Academic Emergency Medicine: Resident Portfolio, 275-277.

Pichette, E. F., Garrett, M. T., Kosciulek, J. F., Rosenthal, D. A. (1999) Cultural identification of American Indians and its impact on rehabilitation services. Journal of Rehabilitation, 65(3), 3-10.

Pollard, R. Q. (1992). Crosscultural ethics in the conduct of deafness research.

Rehabilitation Psychology, 37(2), 87-101.

Priestly, M. (1998). Constructions and creations: idealism, materialism and disability

theory. Disability and Society, 13(1), 75-94.

Rounds, K. A., Weil, M., & Bishop, K. K. (1994). Practice with culturally diverse

families of young children with disabilities. Families in Society: The Journal of

Contemporary Human Services, 38, 3-13.

*Royeen, M. & Crabtree, J. L. (2005). Culture in rehabilitation: From competency to

proficiency. New York: Prentice Hall.

* Shapiro, J. P. (1993). No pity: People with disabilities, forging a new civil right

movement. New York: Times Books.

Sobsey, D. (1994). Violence and abuse in the lives of people with disabilities: The end

of silent acceptance? Baltimore: Brooks Publishing Co. Inc.

* Spector, R. E. (2003). Cultural diversity in health and illness.. New York: Prentice

Hall.

* Wright, B. (1960). Physical disability - a psychological approach. New York: Harper

& Row Publishers.

* Yuker, H. E. (1988). Attitudes toward people with disabilities. New York: Springer

Publishing Company.

Zink, J. (1992). Adjusting to early- and late-onset disability: A personal perspective.

Generations, 16(1), 59-61. 

End of Life (Back to the Top)

* Butt, L., & Rothman, J. (1995). Death can be proud. HEC Forum, 7(2-3), 81-93.

* Butt, L., & Scofield, G. (1997). The Bright Line Reconsidered: The Issue of Treatment

Discontinuation in Ventilator-Dependent Tetraplegia. Topics in Spinal Cord Injury

Rehabilitation, Winter 2(3), 85-94.

Charlifue, S. W., & Gerhart, K. A. (1991). Behavioral and demographic predictors of

suicide after traumatic spinal cord injury. Archives of Physical Medicine and

Rehabilitation, 72(7), 488-92.

Cohen-Mansfield, J., & Jensen, B. (2007). Adequacy of spouses as informants regarding

older persons' self-care practices and their perceived importance. Families, System, &

Health, 25 (1), 53-67.

Guin, P. (2003). Things remembered from patients at the end of life. SCI Nursing: A

Publication of the American Association of Spinal Cord Injury Nurses, 10 (4), 261-

262.

Haller, B. (2006). Thoughts on 'Million Dollar Baby'. Journal of Research in Special

Educational Needs, 6(2), 112-114.

Hicks, F., Thom, V., Allison D., & Corocoran G. (1993). Spinal Cord Compression: the

hospice perspective. Journal of Palliative Care, 9(3), 9-13.

Jackson, S. (2005). Adjustment to the process of grief following a spinal cord

injury/dysfunction. SCI Nursing, 22(1), 9-15.

Krause, J. S., Devivo, M. J., & Jackson, A. B.  (2004)  Health status, community

integration, and economic risk factors for mortality after spinal cord injury. 

Phys Med Rehab, 85(11):1764-1773.

* Maynard, F. M., & Muth, A. S. (1987). The choice to end life as a ventilator-dependent

quadriplegic. Archives of Physical Rehabilitation Medicine, 68(12), 862-4.

O’Connor, P. J. (2006). Trends in spinal cord injury. Accident Analysis & Prevention, 38

(1), 71-77.

* Patterson, D. R., Miller-Perrin, C., McCormick, T. R., & Hudson, L. D. (1993).

When life support is questioned early in the care of patients with cervical-level

quadriplegia. New England Journal of Medicine, 328(7), 506-509.

* Schneiderman, L. J., & Spragg, R. G. (1988). Ethical decisions in discontinuing

mechanical ventilation. New England Journal of Medicine, 318 (15), 984-8.

Wortman, C. & Silver, R. (1992). Reconsidering assumptions about coping with loss:

an overview of current research. Found Crisis and Experiences of Loss in Adulthood.

Hillside, NJ: Lawrence Erlbaum Associates, Inc.

Health Behaviors and Prevention (Back to the Top)

* Adcock, R. J., & Hough, S. (2004). Accessibility for safe evacuation following a spinal

cord injury during an emergency: Safety for whom? SCI Psychosocial Process, 17.3,

158-162.

Clark, F.A., Jackson, J.M., Scott, M.D., Carlson, M.E., Atkins M.S., Uhles-Tanaka, D., & Rubayi, S. (2006). Data-based models of how pressure ulcers develop in daily living contexts of adults with spinal cord injury. Archives of Physical and Medical Rehabilitation, 87(11): 1516-25.

* Consortium for Spinal Cord Medicine (2000).  Pressure ulcer prevention and treatment

following spinal cord injury.  Washington, DC: Paralyzed Veterans of America.

* Davis, M., et al. (2000). Relaxation and Stress Reduction Workbook. (5th ed.).

Oakland: New Harbinger Publications.

* Dunn, M., Love, L., & Ravesloot, C. (2000). Subjective health in spinal cord injury

after outpatient healthcare follow-up. Spinal Cord, 38(2), 84-91.

* Elliott, T.R., Bush, B.A., & Chen, Y. (2006). Social problem-solving abilities predict

pressure sore occurrence in the first 3 years of spinal cord injury. Rehabilitation

Psychology, 51, 69-77.

* Garber S. L., Rintala, D. H., Hart, K. A., & Fuhrer, M. J. (2000). Pressure ulcer risk in

spinal cord injury: predictors of ulcer status over 3 years. Archives of Physical

Rehabilitation Medicine. 81: 465-71.

* Garber S.L, Rintala, D. H., Rossi, C. D., Hart, K. A., & Fuhrer, M. J. (1996). Reported

pressure ulcer prevention and management techniques by persons with spinal cord

injury. Archives of Physical Rehabilitation Medicine. 77(8):744-9.

* Hammond, M. C., Umlauf, R. L., Matteson, B., & Perduta-Fulginiti, S. (Eds.). (1993).

Yes, you can: A guide to self-care for persons with spinal cord injury. Washington,

DC: Paralyzed Veterans of America.

** Jackson, A.B., Dijkers, M., DeVivo, M. J., & Poczatek, R. B. (2004). A demographic

profile of new traumatic spinal cord injuries: Change and stability over 30 years.

Archives of Physical Medicine and Rehabilitation, 85(11), 1740-48.

Lanig, I., et al. (1996). A practical guide to health promotion after SCI. Gaithersburg,

Maryland: Aspen Publishers.

Manns, P.J. & May, L.A. (2007). Perceptions of issues associated with the maintenance and improvement of longterm health in people with SCI. Spinal Cord, 45(6), 411-419.

* McKinley, W. O, Gittler, M.S, Kirshblum, S. C, Stiens, S. A., & Groah, S. L. (2002).

Spinal cord injury medicine. 2. Medical complications after spinal cord injury:

Identification and management. Archives of Physical Rehabilitation Medicine. 83(3

Suppl 1):S58-64, S90-8.

* Njoki